Unruptured Aneurysm Treatment

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Joined: Sat Sep 13, 2014 4:29 pm

Unruptured Aneurysm Treatment

Postby MoonMommy » Fri Mar 01, 2019 3:33 pm

If you've had an non-ruptured aneurysm treated, would you be willing to share your story here? As common as it is for PKD to lead to brain aneurysms, I'm finding it difficult to find information about when and how people with PKD should treat them.

About me:
I'm preparing to schedule a craniotomy to have 2 small (1.5MM and 2MM / closely located) saccular aneurysms clipped. I'm a 37 y/o female, diagnosed with PKD at 16, still 100% kidney function and normal blood pressure, both Kidneys full of cysts and enlarged I have a strong family history (mother and 3 uncles) of ruptured and non-ruptured/treated brain aneurysms. I've known about one of my aneurysms for over 3 years. The other one was just discovered recently (unknown if it's new or just a new imaging angle that captures both). For 3 years, my first neurosurgeon told me that my single 1.5MM aneurysm was insignificant, too small (under 7MM) to operate on, and unlikely to cause me any problems, so we would just "watch it" (MRAs every 6 months) to see if it grew. Due to an insurance change, I had to find a new neurosurgeon. The new one insisted on better imaging (CT with contrast, then a cerebral angiogram), which revealed the 2nd aneurysm and recommended surgery. He also says that brain aneurysms don't usually grow.

I was quite surprised to learn that aneurysms as small as 1.1MM can be either clipped (invasive surgery/craniotomy) or coiled (non-invasive procedure). I also found a study from 2015 that showed 37% of ruptures occurred in aneurysms 1.5MM to 5MM. My husband and I have differing opinions on whether the surgery is a good idea and I have a lot of emotional baggage about craniotomies (my mother's was tragic). I'd really appreciate hearing other stories. Maybe some advice? What to expect? So far I know it'll be 2-5 days in the hospital and 4 weeks recovery . . . . so I could use some positive vibes to focus on.

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