Jinarc AND/OR Sandostatin (Octreotid) ADPKD

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Joined: Fri May 10, 2019 12:59 pm

Jinarc AND/OR Sandostatin (Octreotid) ADPKD

Postby Puffin » Mon May 13, 2019 12:43 pm

Hello

I am taking Jinarc since 20 months (ADPKD) and started no a therapy with Sandostatin (Octreotidum) due to additional liver cysts. The health insurance doesn't defray the costs, because the benefit is not / not yet scientifically proven.

Does anyone has experience with Jinarc and Sandostatin or only with Sandostatin?

Thank you and Cheers, Puffin

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